karen Tiffanie and my grandma got home find on friday th 23 and i got to come home on monday the 26 .Tiffanie wrote seth a letter he shod be getting it...
Hello, Becky, I am glad that you all made it home ok, and I hope that your headaches get better soon! Seth just got the letter from Tiffanie, and is working...
Dear All, We haven't been in touch for a long time, although we do read the e-mails about what is happening to the children. Molly is now aged 8 years, and a...
David Campbell
D.Campbell@...
Mar 9, 2007 9:18 am
1354
Dear David, Thanks for the update on Molly-I have thought about her of and on, since her story on the nomodsyndrome.com site when Seth was 2-3 years old got me...
Hello everyone. Hallie and I are going to the NIH next week and I was just wondering if anyone else would be there. We arrive on Mach 20th and leave the 23rd....
Dear Karen, It was kind of you to respond to our e-mail. We are more than pleased that anakinra has worked well for Seth, and that Molly's story helped to send...
David Campbell
D.Campbell@...
Mar 13, 2007 10:13 am
1357
karen I will try to get aust 12-16 too i will let you guys know when we are going ot be sceld to go back. i would love to meet with jennifer and her daughter...
hello eveone i was just woundering if anyone else is fighing with these headaches too.if so what kind of stuff are you doing to help them.thay have me on...
Hi Becky. I am so sorry to hear that your headaches are so bad. You may remember that I told you that I had a very similar reaction after my first LP at the...
hello jennifer No i don't mind if you talk with dr g about us at all.my headaches are up frunt and thay don't burn its jus a consent pain.it dosen't throb or...
Hi, My name is Ken from Korea. Please see if you can some info from Orthomolecular Medicine. Refer to International Society for Orthomolecular Medicine. Good...
Dear Ken, It isn't clear whether your message below concerns me, since it answers an e-mail whose subject is Seth; but I'll reply anyway, since I wrote that...
Oh my god, so what did Ashleighs parents do to her diet, what did they cut out? im so interested in all this charlie moores mum - karen xx lordnlady...
Hi all, I have just spent the last 24 hours cleaning vomit, so you'll have to excuse my ignorance, but what is this about? I hope that this is not someone...
I have a question, I live in England and Ive looked at all the ingrediants in products since your emails and I am yet to see RED 40 listed on the ingreadiant...
If you find that this is a sick email from 'lordnlady' if anyone can find anything out about the person concerned please forward me the details and I will...
Hi I rarely post here but wow this is a bit off key! Lordnlady has no reason to be here with children and adults with NOMID or any PFS. If the NIH and Docs in...
Well why dont we wait and see if Ashleigh and Shannon post a mail telling us their great fortune. I dont disagree with you about additives and colourings and...
Ok, ive just emailed our prime minister tony blair asking him about it, lets see what he has to say, as i do believe you but dont know what we can do to help !...
Karen A question: If breastfed, and CINCA occurs during this period, how would the attached be possible??? People need to be careful what hope/comment they...
What a bizarre email thread. We got an email confirming 'lordnlady' unsubscribed themselves from the nomidsyndrome group so hopefully that's the end of that....
This is Shannon, Ashleigh's Mom. I was under the name irishmommieto5 on here before. I spoke to a few of you and meet one of you personally at the NIH. Jorma...
I thought the same thing...as far as breastfeeding...since ashleigh's flares began at five weeks...but us mothers were the ones consuming the dyes! I know...
I know its mad, but i was breastfeeding charlie, then his rash appeared the day he was given 2 oz of SMA baby milk as soon as he had that his arms and legs...
I just wanted to make an observation, when Michael was ill as a newborn I had to make a million changes to his diet and exposure to everything. He was so sick...
WELL SAID. ... From: nomidsyndrome@yahoogroups.com [mailto:nomidsyndrome@yahoogroups.com]On Behalf Of Karen Sent: Monday, March 26, 2007 9:37 AM To:...
Karen, please stop worrying about what you could of or couldn't with your son. I"m sorry that this some what insensitive person is causing us all to blame...
Karen, I just want to say AMEN! thanks in writting my thoughts over the latest discussion. regards Gerard, parent of Eline, the Netherlands ... From:...
Honestly, Jorma was just trying to share the information that seemed to have helped Ashleigh. He did not come on here to bother anyone. He is just passionate...
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