Hi Everyone! Yes, we are down right, freezing! I'm sure Dorie and Camille, Karen A, I am very sure you are feeling the same! Brrrrr! I got an email from nikki...
Dear All, I saw the nes with pictures of the Northeast's amssive snowfall, and have you in my thoughts and prayers! Stay warm and safe. I cannot imagine...
Hi Sheri, Karen and all, I am sorry I have not been in touch! My computer died, I lost everything and I am feeling quite sick over it. I did not back things...
Dear Karen A. and everyone, I am so sorry to hear that your computer has died, and you ahve lost everything. Have you taken it into a shop to have them try to...
hello all my lp will be on tuesday at 3 p'clock and tiffanie will be on tuesday at 2 o'clock we will be inpaimtions this time .i will be an the 5sw floor my...
Good morning, Several visits at the NIH we have met 2 families , both from Florida. They come every 2 weeks for 1day for treatment. One mom is Jackie with...
Hello eveone I'm still back here at the nih intell monday, i got the past spinal headaches agian doin a little better now .I meet meranda and her mom and dad...
Hello eveone I'm still back here at the nih intell monday, i got the past spinal headaches agian doin a little better now .I meet meranda and her mom and dad...
Camille, I have no met the families you are looking for, but your friend should look at www.clinicaltrials.gov to see all the many research studies going on...
Hello eveone I'm still back here at the nih intell monday, i got the past spinal headaches agian doin a little better now .I meet meranda and her mom and dad...
Dear Becky, I hope that you are feeling better, and get out soon! Sorry that we did not get to visit with you as much as we did with your grandmother and...
Hi everyone! We got home a day early from NIH, so I was happy about that! The drive home was great! No new snow! Karen, I am so sorry to hear of your episode...
karen Tiffanie and my grandma got home find on friday th 23 and i got to come home on monday the 26 .Tiffanie wrote seth a letter he shod be getting it...
Hello, Becky, I am glad that you all made it home ok, and I hope that your headaches get better soon! Seth just got the letter from Tiffanie, and is working...
Dear All, We haven't been in touch for a long time, although we do read the e-mails about what is happening to the children. Molly is now aged 8 years, and a...
David Campbell
D.Campbell@...
Mar 9, 2007 9:18 am
1354
Dear David, Thanks for the update on Molly-I have thought about her of and on, since her story on the nomodsyndrome.com site when Seth was 2-3 years old got me...
Hello everyone. Hallie and I are going to the NIH next week and I was just wondering if anyone else would be there. We arrive on Mach 20th and leave the 23rd....
Dear Karen, It was kind of you to respond to our e-mail. We are more than pleased that anakinra has worked well for Seth, and that Molly's story helped to send...
David Campbell
D.Campbell@...
Mar 13, 2007 10:13 am
1357
karen I will try to get aust 12-16 too i will let you guys know when we are going ot be sceld to go back. i would love to meet with jennifer and her daughter...
hello eveone i was just woundering if anyone else is fighing with these headaches too.if so what kind of stuff are you doing to help them.thay have me on...
Hi Becky. I am so sorry to hear that your headaches are so bad. You may remember that I told you that I had a very similar reaction after my first LP at the...
hello jennifer No i don't mind if you talk with dr g about us at all.my headaches are up frunt and thay don't burn its jus a consent pain.it dosen't throb or...
Hi, My name is Ken from Korea. Please see if you can some info from Orthomolecular Medicine. Refer to International Society for Orthomolecular Medicine. Good...
Dear Ken, It isn't clear whether your message below concerns me, since it answers an e-mail whose subject is Seth; but I'll reply anyway, since I wrote that...
Oh my god, so what did Ashleighs parents do to her diet, what did they cut out? im so interested in all this charlie moores mum - karen xx lordnlady...
Hi all, I have just spent the last 24 hours cleaning vomit, so you'll have to excuse my ignorance, but what is this about? I hope that this is not someone...
I have a question, I live in England and Ive looked at all the ingrediants in products since your emails and I am yet to see RED 40 listed on the ingreadiant...
If you find that this is a sick email from 'lordnlady' if anyone can find anything out about the person concerned please forward me the details and I will...
Hi I rarely post here but wow this is a bit off key! Lordnlady has no reason to be here with children and adults with NOMID or any PFS. If the NIH and Docs in...
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