Hi Karen, I only have a minute right now, but can write later, just wanted to let you know that Miranda and all of us are going to be at the Inn on July 30th...
hello to all we wont be there intell august 6 th -10th we wont come intell late it take us 7hours to fly there. so we wont be there intell about 8pm on the 6th...
Hello everyone! We returned from the NIH last Thursday. It went well... although we were supposed to go to Children's Memorial Hospital in Pittsburgh because...
Hello to all, Dori, glad to hear you got home safe and had some fun as well. I have heard of Sesame Place and it sounds great. I bet Kayla was very excited...
hello jennifer i would love to meet up with you. so far we don't have any appointment on the 10th so we can try to meet that day.we will be staying at the...
I just wanted to send a quick message to say hello to you all. I hope everyone is doing well. I miss the posts though, you are all the reason I stay sane...
Hi Karen, I know its been a bit quiet on the post front which I hope just means all is well with everyone and everyone has been a bit busy. Charlie is doing...
Hello everyone, Isaac and I leave this Saturday for NIH. I was hoping to leave Sunday, but the College World Series has taken over our airport for that day....
Hello to anyone who still reads our posts!! It has been a long time since we have all talked. Hope all is well, I am assuming that no news is good news. ...
Dear Sherri and All, We are here ,and all is ok, but our dates have been moved up for our NIH trip to July 30-August 3rd. Sherri, will that be when you will...
... be ... tomorrow ... It ... but ... NOMID ... we ... apartment ... paperwork ... but ... to ... and ... done, ... legal ... NOMID ... as ... exempt ... but...
Hi all, I hope everyone is well and enjoying there summer. Karen, I am so excited for you about you adoption process. I have several friends who have...
Hi Becky. Our dates were changed also. I was so dissappionted because I was looking forward to meeting you and Karen D. I will still be having my eye surgery...
thankxs jenifer .i was hoping we can meet to but dr.g is out of town that week.so we had to change it.my headachees or doing better now i still have them but...
Ok, this is crazy! I need you all so please send a note ! I miss haveing you all to share with and wonder how you are all doing so often. I had a horrible...
<br />Hi Karen,<br /><br />I'm so sorry that you had such a bad week. My thoughts and prayers are with you & your message made me cry!<br /><br />I have had...
Dear Karen A. and Louise, First I must say I am so sorrry for you Karen- Thanks for your postings, and my heart goes out to you Karen. I am out of town for a...
Hello all, We are back from NIH again. We are going every four weeks now for I do not know how long. I am meeting some wonderful families each time I go. I...
Hello to all, This is a long shot, but if any of you will be near the NIH, or live close enough to visit the NIH tomorrow (Friday July 28 around noon) call Dr....
I am so glad to hear from you all again. First I wanted to give you a link to have a peek at, I have been searching for an alternative or aid for injections....
Hello All and to you especially Kathe, We just got back from the NIH. Kieran is doing great! We had a HORRIBLE time there. He was sedated the first day we...
Hi Karen I'm still having email problems. The links both appear to have been archived. I think I've added a photo of the front page to the files section. We do...
Hello Karen and all the NOMID families, Does anyone know if Dr. G. is out of town this week? I know she was going to Yellowstone soon, a well deserved...
Dear Louise, I was able to see the photo in the files, and would love to read this article! If you ever are able to upload it, or even cut and paste the text...
Thanks Karen for all your information. I did call the eye clinic and the NIH operator, looking through all my papers I was able to find the additional...
Alex and I will be up at the NIH on the 13th for a week. This is his 2.5year visit. doesn't time fly. where would be our children without the help and support...
Hi Kate, I was thinking of you the other day, funny to see you post. Stephen was asking when we could go back to the fun hospital because he misses his "best...
Dear Everyone, Please tune in to Bloomberg news tonight after 5 pm eastern, 2 pm pacific. I am not sure when it will be on,so turn it on and watch I guess all...
Hi Karen I just got a copy of the report printed by the Bloomberg News. See below. Amgen Arthritis Drug Kineret May Fight a Rare Genetic Disease 2006-08-09...
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