Hello everyone,

 

We haven't written to you about Molly for three or more years. She is now six years old, and in her third year at school. She has a twist to her walk which looks permanent, but in general her symptoms are mild compared to other NOMID patients. Professor Woo at Great Ormond Street Hospital for Children, in London, has recently set her on a course of colchisine in order to counter the inflammation. So far her blotching is lighter, and her skin is smoother than it has ever been. If this drug turns out not to be effective enough, however, then anakinra will be considered.

 

Though we have not been writing to you we have read your e-mails, and our heartfelt good wishes go out to you all.

 

From

 

 

David and Evie Campbell

John and Kate Barton wrote:

How time flies.

Our NOMID website has been up and running for 5 years this month with over
12,000 hits to date.   I thought this might be a good occasion to update the
information on the website with any new information or pictures.   Let me
know if you would like me to add anything about your child to the website --
as little or as much as you like.

Photos and a few sentences of updates are especially welcome.    Anything
from families not yet listed on the website would also be very welcome.

John and Kate Barton

http://pw1.netcom.com/~jkbarton/nomid/Html/nomid_home_page.htm

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