Hi Karen, I wonder if you could make an appointment at Amgen with head of
marketing. as I have already mentioned to you that due to the drug problems
with R.A. patients, that they stopped promoting Anakinra. I feel that they
really need to meet us face to face. Prehapse under all that profit they
could see what an amazing difference it has make to our childrens lives and
keep us in mind and not take it off the market.

I will go to the sites you have mentioned and ask John to add our group to
the list.With regards to the conference I was wondering if Disney would be
willing to fund the first one. I know that they have done one of two in the
past, I guess we can ask make a wish foundation if they could help. Also did
Oprah carry on with the Angel network, and if so we need to send individual
letters from us all to make an impact with her.I was also thinking of
fundraiser, I know that I do design work on furniture and have already
raffled off a chair to Texas Childrens Hospital which raised $637.00
does anybody else to something similar that could atrack attention. Running
5K.We have about 700.00 pounds that my brother raised through his masonic
lodge a couple of years ago. we could use that to start off the foundation
if needed.But having spoken to a tax lawyer I know that we have to pay up a
fair bit just to get all the legal papers written up, I also went to a few
banks, but the needed the paperwork up front even to talk to me, the other
thing we need to consider is trustees and what we will use this money for.

anyway food for thought love Kate