Hello Jan,

Thank you for your reply.  I have read the web site, I just have no brain right now with all the stress I am feeling. :) 

I looked through our medical records and I found this from our immunologist. A "multiplex analysis of serum cytokines shows that there is elevation of multiple macrophage-produced cytokines such as MCP1, MIP, and also other cytokines such as VEGF and interleukin 1-RA."  I also know that the G-CFS level is elevated.

 

Does this sound like what you have heard for NOMID?

Thanks,

Kathe

 

PS. Isaac was also 5.5 weeks early for no apparent reason, but I know that I have read that children with this disease are often premature. Just another piece to the puzzle.