We live in  Nebraska.  Isaac is the youngest of our four boys.  We do have another child with different disabilities, so we have learned to navigate and advocate our way around the medical world on and off the Internet.   We also have a nearby cousin who is a retired MD and helps us a lot.

 

Congratulations on your new grandson.  Our parents love having all their grandsons!

 

We are supposed to hear from NIH this next week.  Hopefully.  Our nurse called out there last week.

 

I do have a question.  Isaac, has had little fevers all along, but now they are lasting longer.  Currently, he has had a fever every day for the last 6 days.  Pediatrician saw no infections.  Do I need to be more concerned?  Our specialist was out of town.

 

Thank you,

Kathe