What a blessing that you can get a diagnosis for your son at such a young age.
There is help and hope for him!! Our daughter, Alice, is almost 20 and she had
been in the study at the NIH for 15 months, she is doing great. Good for you to
look into this web site for support and possible answers to questions. We live
in Michigan. Where are you?
We just became grandparents on Tuesday...a healthy boy, Jonas. Our older
daughter, Laura, and baby are doing fine.
Keep in touch and let us know the results of any tests. When might you know?
Nice hearing from you.
Camille Lieffers



>
> From: "trakylian" <kathebarch@...>
> Date: 2005/02/19 Sat PM 04:03:37 GMT
> To: nomidsyndrome@yahoogroups.com
> Subject: [nomidsyndrome] Re: Fwd: FW: Interview With God
>
>

Hello,
I am new to this group.  We are waiting on blood test results from
NIH for our 8 month old son.  We believe he will be diagnosed with
NOMID/CINCA. He has had symptoms since he was 2 weeks old.
I don't even know what questions to really ask.  Is there any advice
from any of you.
Thank you,
Kathe







--- In nomidsyndrome@yahoogroups.com, "doreliarivera"
<doreliarivera@y...> wrote:
>
> Did you receive a message I poste yesterday?
>
> Thanks.
>
> Dori
> --- In nomidsyndrome@yahoogroups.com, Jan DaPrato <jand71054@y...>
> wrote:
> > Hello again,
> >      I thought if anyone needed a pick me up, this would do it. 
> It's beautiful.     Jan and Zach
> >
> > Note: forwarded message attached.
> >
> >
> >
> > Note: forwarded message attached.
> >
> > 
> >
> > 
> >
> > -----Original Message-----
> > From: Loretta McDonogh [mailto:lorettamcd@c...]
> > Sent: Saturday, February 12, 2005 2:46 PM
> > To: Caymoehle@a...; Dolores McDonough; Gerry Mahoney; Jeanne
> Bortosky;
> > Jim McDonough; Kathy McDonough; Kristen Aldenderfer; Martha
> Aldenderfer;
> > ballycon76@e...; Mary Courtney; Pat Kubiak; Rosie Lupcho; Shirley
M
> > Otto; Sister Barbara (Sister Isabel); Thomas J. Sullivan; Hunt,
> Teresa
> > Subject: FW: Interview With God
> >
> > 
> >
> > 
> >
> > -----Original Message-----
> > From: Terry Reilly [mailto:reilly65@v...]
> > Sent: Saturday, February 12, 2005 10:21 AM
> > To: Terry Anne; Cynthia; Kathy Wilkens; Bill & Gracie Dean; Bill
&
> Melba;
> > Allen; Prax & Nancy Rivera; Pat & Wanda Reilly; Loretta
McDonough;
> Mary &
> > Gus Stapf; Chris (for Mom)
> > Subject: FW: Interview With God
> >
> > 
> >
> > 
> >
> >   _____ 
> >
> > From: FRust30761@a... [mailto:FRust30761@a...]
> > Sent: Friday, February 11, 2005 3:32 PM
> > To: wtb10@c...; mgcc@g...; hihopes@f...;
> > kayserrs@m...; reilly65@v...; no1lildoc@j...
> > Subject: Interview With God
> >
> > 
> >
> > Being happy doesn't mean everything is perfect.  It means you've
> decided to
> > see beyond the imperfections.
> >
> > 
> >
> > 
> >
> > http://www.theinterviewwithgod.com/popup-frame.html





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