Hello,
I am new to this group. We are waiting on blood test results from
NIH for our 8 month old son. We believe he will be diagnosed with
NOMID/CINCA. He has had symptoms since he was 2 weeks old.
I don't even know what questions to really ask. Is there any advice
from any of you.
Thank you,
Kathe







--- In nomidsyndrome@yahoogroups.com, "doreliarivera"
<doreliarivera@y...> wrote:
>
> Did you receive a message I poste yesterday?
>
> Thanks.
>
> Dori
> --- In nomidsyndrome@yahoogroups.com, Jan DaPrato <jand71054@y...>
> wrote:
> > Hello again,
> > I thought if anyone needed a pick me up, this would do it.
> It's beautiful. Jan and Zach
> >
> > Note: forwarded message attached.
> >
> >
> >
> > Note: forwarded message attached.
> >
> >
> >
> >
> >
> > -----Original Message-----
> > From: Loretta McDonogh [mailto:lorettamcd@c...]
> > Sent: Saturday, February 12, 2005 2:46 PM
> > To: Caymoehle@a...; Dolores McDonough; Gerry Mahoney; Jeanne
> Bortosky;
> > Jim McDonough; Kathy McDonough; Kristen Aldenderfer; Martha
> Aldenderfer;
> > ballycon76@e...; Mary Courtney; Pat Kubiak; Rosie Lupcho; Shirley
M
> > Otto; Sister Barbara (Sister Isabel); Thomas J. Sullivan; Hunt,
> Teresa
> > Subject: FW: Interview With God
> >
> >
> >
> >
> >
> > -----Original Message-----
> > From: Terry Reilly [mailto:reilly65@v...]
> > Sent: Saturday, February 12, 2005 10:21 AM
> > To: Terry Anne; Cynthia; Kathy Wilkens; Bill & Gracie Dean; Bill
&
> Melba;
> > Allen; Prax & Nancy Rivera; Pat & Wanda Reilly; Loretta
McDonough;
> Mary &
> > Gus Stapf; Chris (for Mom)
> > Subject: FW: Interview With God
> >
> >
> >
> >
> >
> > _____
> >
> > From: FRust30761@a... [mailto:FRust30761@a...]
> > Sent: Friday, February 11, 2005 3:32 PM
> > To: wtb10@c...; mgcc@g...; hihopes@f...;
> > kayserrs@m...; reilly65@v...; no1lildoc@j...
> > Subject: Interview With God
> >
> >
> >
> > Being happy doesn't mean everything is perfect. It means you've
> decided to
> > see beyond the imperfections.
> >
> >
> >
> >
> >
> > http://www.theinterviewwithgod.com/popup-frame.html