Dear all.
      we are going good tiffanie has had some headach but she is doing fine .thay increst he anakinra.We are getting ready to go back for our last vist on the 12th.becky
sfokaren2003 <sfokaren2003@...> wrote:

I cannot open any of these attachments, and am now a bit
worried to try.  I do not know what to do.  Any suggestions?  Hope
everyone is doing well.  It seems like we rarely hear from each
other anymore.  Seth is in the next protocol at the NIH, he just
finished his first year of Anakinra.  He had to go up to 2.5 mg/kg
in the new protocol, but is doing much better now.  He started
having lots of flare ups the past month, and his labs and Spinal
tap showed increased inflammation, and no change in weight,
so  they started him on the higher dose.

Hopefully all your children are doing well, and that things go well
for the Bakko family too.   Sherri, I still have that card from the
Children's Inn that Jessica painted if you want it. I just need your
address to mail it to you.

I have been thinking of you all lately, and hope that every one is
having a great NEW YEAR!  I have also been wondering how litle
Charlie is doing, the baby from England.  He must be 2 or more
now. 

Are there  still plans for a NOMID conference in the future?  Any
news would be appreciated!

Thanks,

Karen Durrant

P.S. Bonjour Hervé et Bonne Année aussi! Merci beaucoup pour
le livre.







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