Yes it is a wounder drug. My daughter and i both have the nomid. Its wounderful. I lost almost all of my vison and hearing and my daughter almost lost hers to but thay cout it in time with her.becky

JMDUCA@... wrote:

Email received and glad that all is going well. Erika Perez (our
grandaughter is doing very well too) I think this is a wonder drug these
kids with Nomids are taking. We have a miracle in the making friend.
~Jacie~



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> ATTACHMENT part 2 message/rfc822
To: nomidsyndrome@yahoogroups.com
From: Jan DaPrato
Date: Mon, 6 Dec 2004 12:47:06 -0800 (PST)
Subject: [nomidsyndrome] Fwd: Update on Zach Eise

Jan DaPrato <jand71054@...> wrote:

Date: Sat, 24 Apr 2004 12:14:05 -0700 (PDT)
From: Jan DaPrato
Subject: Update on Zach Eise
To: nomidsyndrome@eGroups.com

Hello everyone. I have tried countless times to get my e-mails through, but since I have changed my e-mail address they keep being returned; If anyone gets this please let me know. If there is something I need to do, again, please let me know. Zachary and I returned from the NIH April 16. It was a great trip. His bone density has slightly improved. He still has severe osteoporosis, but we will take any improvement, anytime. His vision and hearing loss have remained the same. I am happy that it has not progressed. We met a lovely little boy Jamaal Brown, who is pretty severe; He was quite afraid of all the doctors and treatments; Understandibly so, when you do not understand what they are going to do; Zach made him laugh and the two really bonded. Zach asked Dr. Goldbach-Mansky if only she could clone him, then they could take his clone home with them and he could cheer up Jamaal when he is frightened. I hate to see Janet Jones and Natalie leave this summer, but wish them both the best. Janet is long overdue for retirement and a well deserved one at that. Natalie will go back to Harvard Medical School; They both are really dedicated individuals. If anyone receives this e-mail, PLEASE let me know. Take Care, Jan DaPrato

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