Date: Sat, 24 Apr 2004 12:14:05 -0700 (PDT)
From: Jan DaPrato
Subject: Update on Zach Eise
To: nomidsyndrome@eGroups.com

Hello everyone. I have tried countless times to get my e-mails through, but since I have changed my e-mail address they keep being returned; If anyone gets this please let me know. If there is something I need to do, again, please let me know. Zachary and I returned from the NIH April 16. It was a great trip. His bone density has slightly improved. He still has severe osteoporosis, but we will take any improvement, anytime. His vision and hearing loss have remained the same. I am happy that it has not progressed. We met a lovely little boy Jamaal Brown, who is pretty severe; He was quite afraid of all the doctors and treatments; Understandibly so, when you do not understand what they are going to do; Zach made him laugh and the two really bonded. Zach asked Dr. Goldbach-Mansky if only she could clone him, then they could take his clone home with them and he could cheer up Jamaal when he is frightened. I hate to see Janet Jones and Natalie leave this summer, but wish them both the best. Janet is long overdue for retirement and a well deserved one at that. Natalie will go back to Harvard Medical School; They both are really dedicated individuals. If anyone receives this e-mail, PLEASE let me know. Take Care, Jan DaPrato