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Re: [nomidsyndrome] Zachary's trip
Such great news to hear. I will share this news with my daughter and of
course Erika who by the way is also doiing very well on the drug. Last
visit my daughter and son in law were told Erikas eyesight and hearing
had somewhat improved. The headaches are down to minimal and NO MORE
SPIANL TAPS for well over 4 months now. Erika is to return to NIH next
month for a 4 day visit. It is always good to pass on wonderful news. We
are so blessed to have a drug that finally is working. ~Jacie Duca~Erika
Perez grandma
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