Hi Karen,
I just go your email, I just hooked up another computer and finally got all
360 emails!!!!!!!! Most of it junk.
There is someone who keeps using the website for viruses. I keep getting
mail that says, nomidsyndrom, there is no e, and I have already had a virus
from trying to open an attachment that said that! I always open any email
from nomid, but not any more. If it has an e at the end, then I know it's
ok. I hope!!
Miranda is doing alright, not anything special to write about, when we left
the NIH last, she had enphitigo, not sure how to spell that one! She still
has stys' in both eyes. I think she is just having a hard time trying to get
over this. Plus her immune system isn't too good.
I lowered her steroids again tonight, as Dr. Goldbach Mansky instructed.
We'll see how the next few days are.
We go back June 19 through the 30th. You will be there on my birthday,
(13th) I sure wish we could be there together again. You will probably be in
the new part of the Children's Inn. It is really beautiful in there.
I am glad to hear Seth is doing well, I hope this continues to work for
everyone.
Well, I had better get to bed, I have a new job now and I have to be out of
here at 7:30am.
Take care and keep us posted. We will be thinking of you!
Love Sherri
----- Original Message -----
From: "sfokaren2003" <sfokaren2003@...>
To: <nomidsyndrome@yahoogroups.com>
Sent: Thursday, May 13, 2004 3:58 PM
Subject: [nomidsyndrome] Hello


> Dear All,
>
> I have received all your e-mails, but cannot read the ones from
> Fam.Rohland. I do not know if anyone else can either, but
> welcome to you just the same. I have never been able to open
> attachments on this group, so maybe it is just our computer.
>
> I wish you all the best for Kieran, and I know it will help him a lot.
> It has for Seth, and he is getting used to it more, although certain
> injection site are not too popular! I am sure that Kieran will do
> fine, and may want to do it for himself, like Alice, after awhile. My
> nephew is diabetic, and has been since he was 7, and has
> always done his own injections, and will not let his parents do it!
> They have actually never done it yet, and he is 10 now, although
> they help watch him draw up the dose, etc. If you have any
> questions, you can e-mail me direct too.
>
> We will be back at the NIH June 13-17th, and will be at the
> Children's Inn. We would love to meet any of you there or at the
> NIH clinic too. It has been fun meeting everyone so far, and I
> hope you all are doing well. I am so glad that we are getting to
> meet in person!
>
> Have a great day and keep up the writing, I read every one, but
> do not always get a chance to sit down to write ver y often.
>
> Best wishes,
>
> Karen Durrant
>
>
>
>
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