I'm off to work but wanted to let you know that I got your email. I'm glad you are going to the NIH..are you going to be part of the study? How is Kieran doing? Nice to hear from you......Camille
hello folks, sorry to hear that miranda is not doiong so well...we will keep you all in our prayers that the doctors would be able to have the wisdom to figure...
belin@...
Oct 8, 2001 5:37 pm
Hi all, Spoke to Sherri today and Miranda is still the same. I hope that you got through to Dr Goldsmith. Belinda. I think that Maxwell might have glue ears...
Kate and John Barton
jkbarton@...
Oct 10, 2001 3:43 am
Dear Karen, Thank you for writing to us all about Seth. May I comment on just one point you raise? You say that if he catches a virus his rash almost...
Dear Evie Campbell, I tried to e-mail a message to you via the egroups system last week, but I do not think it went through. Thanks for letting me know about ...
That is very intresting that Seth's rash goes away when he is sick. Phillip had a rash since birth however since the preylone, naprosyn and Methotraxte he only...
Dear Kim, Thanks for writing. It was very comforting to hear your feelings about people's statements about your child. I have sometimes been tempted to say...
Hi from the Barton bunch, I promise that the trip and photo's will be on the web soon. with regards to you mention of rashes, Alex has a rash all the time...
hi kim, i was just wondering if phillip takes zantac. our son, maxwell, takes the same medicines as phillip but he also takes zantac (and enbrel). i thought...
Hi Karen, Just thought I would write and let you know how our trip was with the NIH. It was BUSY!!!! We had hopes to sight see as well, like the Smithsonian,...
Mintcreek
mintcrik@...
Feb 11, 2003 2:03 pm
hi karen, welcome to the nomid family... sorry to hear about seth's trials (and yours too, of course) i wanted to let you know that we have plans to visit the...
hi folks, here is janet jones address where she told me that i should send the medical reports to: Janet Jones 10 Center Drive MSC1828 Building 10 Room 9S-205 ...
Dear Everyone, If you need to call Janet Jones, her number is 1-877-278-4330. Her fax is 1-301-480-0676. All they need to start the process of booking an ...
Dear Karen, Many thanks for your e-mail below, kindly providing information about Janet Jones and her telephone and fax numbers. Do you happen to have an...
David Campbell
D.Campbell@...
Feb 20, 2003 3:46 pm
zdear David and Evie, Thank you for sharing your results of Molly's mutation. I feel that we have much in common, since Seth is also very mild. The doctors...
Hi Michele, I'm off to work but wanted to let you know that I got your email. I'm glad you are going to the NIH..are you going to be part of the study? How...
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