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Hi Camille,
I am so glad to hear Alice is doing well! You must all be so excited about graduation!! Big Congrats to Alice!!!!!!!!
Miranda is doing ok, her face is still a mess! It looks worse than when you saw her. Her eye is finally drying up, but her face is very rough and scabby.
Washington was great, we ended up going to the Smithsonian and walked around, we had fun. Miranda was exhausted by the time we got back.
I will keep you updated, we return the NIH on June 19. Not sure how long, maybe a week or the 10 day stay. As the time gets closer, Janet will let us know.
Well I had better go, we are having a big celebration this Saturday for Miranda's 9th birthday!! I have so much to do. Hope all is well with you, I will write soon. It was a real pleasure to meet you and Alice, Miranda is still asking for Alice, I do have the pictures on my computer, I will send them. Take care.
Love,
Sherri
----- Original Message -----From: Terry & Camille LieffersTo: NOMID EGROUPSent: Sunday, May 02, 2004 6:37 PMSubject: [nomidsyndrome] AliceGreetings,Yes, Jan , we got your email. Isn't the NIH a blessing!! I only wish that Zach and Alice would be there on the same week to meet. Alice is also graduating this May. Everyone there sure loves Zach, a funny guy!!!Sherri, it sure was nice meeting you and your hubby.....but really a treat meeting Miranda, what a cutie!! For all she has gone through, she is doing great. It was nice of you to remember Alice's birthday and the death by chocolate cake was just that :-)For all the rest of you...Alice is doing great, her labs came back practically all normal, which is simply a miracle. She looks great and feels wonderful. We do not go back for 6 months. We're going to miss that place!!Can't wait to hear from more you out there....Camille Lieffers
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