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nomidsyndrome · N.O.M.I.D/C.I.N.C.A. Syndrome
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Alice   Message List  
Reply | Forward Message #520 of 2358 |
Alice

Greetings,
Yes, Jan , we got your email.  Isn't the NIH a blessing!!  I only wish that Zach and Alice would be there on the same week to meet.   Alice is also graduating this May.  Everyone there sure loves Zach, a funny guy!!!
Sherri, it sure was nice meeting you and your hubby.....but really a treat meeting Miranda, what a cutie!!  For all she has gone through, she is doing great.  It was nice of you to remember Alice's birthday and the death by chocolate cake was just that :-)
For all the rest of you...Alice is doing great, her labs came back practically all normal, which is simply a miracle.  She looks great and feels wonderful.  We do not go back for 6  months.  We're going to miss that place!!
 
Can't wait to hear from more you out there....
Camille Lieffers
Mon May 3, 2004 1:37 am

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custer502000
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Forward 		Message #520 of 2358 |
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Just a quick note to let you know that Alice is home and hive free!! In less than 24 hrs her hives were gone. She also has had no headaches and says she... 		TERRY & CAMILLE'S MAIL
custer502000
Offline Send Email 		Nov 9, 2003
9:47 pm

Dear Camille, terry and Alice, I am so glad that the medicine is working so well for you, and the other children. thanks for the information, and please share...
sfokaren2003
Offline Send Email 		Nov 11, 2003
7:18 pm

Hi Karen and all, sorry for not posting sooner. I sometimes wish their were 48 hours in a day so that I would have time just sit and think. Maybe not!. The...
John and Kate Barton
kate77494
Offline Send Email 		Nov 12, 2003
4:36 am

Thanks Kate for explaining the treatment. The only other things I might add is that they take care of the travel arrangements and also pay for the drug. We...
TERRY & CAMILLE'S MAIL
custer502000
Offline Send Email 		Nov 12, 2003
11:59 am

Hi Everyone, I just wanted to let everyone know that we are not going to the NIH in December. We, personally are not ready for her to go yet. There are also ...
Mintcreek
mintcrik@...
Send Email 		Nov 12, 2003
8:37 pm

Dear Sherri, I'm sorry to hear that you have to change your plans about your trip to the NIH. I'll pray that whatever is going on in your life resolves itself...
TERRY & CAMILLE'S MAIL
custer502000
Offline Send Email 		Nov 13, 2003
11:52 am

Greetings, Yes, Jan , we got your email. Isn't the NIH a blessing!! I only wish that Zach and Alice would be there on the same week to meet. Alice is also...
Terry & Camille Lieff...
custer502000
Offline Send Email 		May 3, 2004
1:37 am

Hi Camille, I am so glad to hear Alice is doing well! You must all be so excited about graduation!! Big Congrats to Alice!!!!!!!! Miranda is doing ok, her face...
Mintcreek
mintcrik@...
Send Email 		May 3, 2004
1:04 pm

Greetings All. Alice had successful glaucoma surgery about 6 weeks ago. Dr Rubin was so helpful to us and our local doctor. They talked several times. Dr...
Terry & Camille Lieff...
custer502000
Offline Send Email 		May 23, 2006
12:44 am
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