Hello everyone. I have tried countless times to get my e-mails
through, but since I have changed my e-mail address they keep being
returned; If anyone gets this please let me know. If there is
something I need to do, again, please let me know. Zachary and I
returned from the NIH April 16. It was a great trip. His bone
density has slightly improved. He still has severe osteoporosis, but
we will take any improvement, anytime. His vision and hearing loss
have remained the same. I am happy that it has not progressed. We
met a lovely little boy Jamaal Brown, who is pretty severe; He was
quite afraid of all the doctors and treatments; Understandibly so,
when you do not understand what they are going to do; Zach made him
laugh and the two really bonded. Zach asked Dr. Goldbach-Mansky if
only she could clone him, then they could take his clone home with
them and he could cheer up Jamaal when he is frightened. I hate to
see Janet Jones and Natalie leave this summer, but wish them both
the best. Janet is long overdue for retirement and a well deserved
one at that. Natalie will go back to Harvard Medical School; They
both are really dedicated individuals. If anyone receives this e-
mail, PLEASE let me know. Take Care, Jan DaPrato