Hi I am grandmother to Erika Lynn Perez. We will be going to the NIH
(first time) May 1st. Ihave ben keeping up with your many emails and am
so pleased to hear how this new medication is aiding your children,and
now it is our turn to venture tio Maryland. We will be there for the
first time May 1 st. I have tried to reach Camille by email but my mail
as she is only 35 miles from where we live. But my mial is returned.
It has been a greulling long and tedious wait. I am so thankful to hear
about all the many children who have taken this trip and seeing the
results of how this new drug is helping them and praying and hoping that
it shall do the same for Erika.
I have like a million questions (as I am sure that you all do) but shall
remain slent and wait our turn. I keep you all in my prayers and
thoughs. Hugs to all the chidren who go through such an ordeal and God
bless the parents who stand by and wait hope and pray for a miracle.
~Jacie~