Hi Everyone,

I just wanted to post a Thankyou to everyone who has emailed me
regarding 'Our Little Boy' Charlie, (as its taking me ages to reply
to everyone). Its great to know there are other parents and people
with the syndrome out there, and that I am not alone anymore. It has
amazed me the difference in severity of the cases and I wish Alex all
the best with his trial this week for the new drug.

I am happy for Charlies case to go on to the website, even as a
personal story for now while I sort out some photos, so please let me
know what you need for him to be added.

Best Wishes
Karen