Dear John, Kate and Alex,
I hope Alex begins to feel better with the Anakinra drug. It sounds very promising. Zachary has a great support group and I will ask them to include Alex in their prayers. I am very anxious to get started with the new treatment. Zachary, now 19 continues to regress physically. It is amazing how he is so optimistic after everything he has been through. He keeps saying "Mom not if it will work, but when it works!" If Kate has anything she can pass along to us, that she feels would be beneficial, I would greatly appreciate it. Take Care and again thank you for putting together this wonderful web-site.
Jan