It's been awhile (I know) but we finally are in the process of getting
my grandaughter Erika into the NIH. Last visit to the doctor my daughter
was told that Erika will be going. Also they now are beginning to think
that my daughter (and Erikas mom) Amy Jo may have the same problem
namely NOMIDS. She just had blood tests done. I have continued to remain
with this group and read all emails. You all have been a great source of
information and strength to my daughter and her family,and I sincerely
thank you one and all. Gods love and blessings ~Jacie~