It's nice to see there is a place I can go to chat with people about
this syndrome. My great-daughter has NOMID. Tiffanie will be 8
next Monday. My daughter also has it but we didn't know what it was
until now. My daughter (Becky) is now 27 yrs. Both of my sons are
healthy.
Dear Jan, thanks for the information about orthotics, it was helpful. Seth has some inserts from the NIH, and I need to get some new ones, but the Podiatrist...
It's nice to see there is a place I can go to chat with people about this syndrome. My great-daughter has NOMID. Tiffanie will be 8 next Monday. My daughter...
An extended hug to you friend. I know just what turmoil and anguish you all have been through......Searching for answers,pleading in prayer,and worrying not...
Dear All, I have received all your e-mails, but cannot read the ones from Fam.Rohland. I do not know if anyone else can either, but welcome to you just the...
I will be taking Alex and his sister Abigail on the 23rd. will anybody be up there then. Alex is now giving himself the anakinra and both doses of heperin...
Hi Kate, Becky, Tiffanie & myself will be there. We are going from the 15th to the 26th. Tiffanie will be excited when I tell her that Alex will be there....
Hi Karen, I just go your email, I just hooked up another computer and finally got all 360 emails!!!!!!!! Most of it junk. There is someone who keeps using the...
Jim&Sherri
mintcrik@...
May 14, 2004 2:31 am
YES, it is a virus! I just got this machine up and running, until I get a different antivirus program! I am so mad that someone would stoop that low and use...
Jim&Sherri
mintcrik@...
May 14, 2004 2:33 am
Hi, I e-mailed Michelle Grifin through this group a few days ago, but am not sure if it worked. Michelle, if you did not get the e-mail post I only sent to...
Hello to all, Miranda is going back on March 9th. Apparently the last mri showed more inflammation in her inner ear, so they want to re-check her and do some ...
Hello Sherri, I have been reading all the e-mails and have been so busy lately, I have not responded to many of them. Thanks to the Bartons this wonderful web...
Dear Everyone, I finally got Seth's story and photos to John and Kate, and they have put it on their site. Thanks for doing this! If anyone is interested in...
Hello everyone! Is anyone going to be at the NIH next week? We leave on Sunday and return the 4th. I would love to meet with anyone who will be there. Also,...
Hi Dorelia and everyone, My son is very close in age to Kayla, he just turned 2 this month and I know what you mean about SLEEP (or lack there of), Miko was ...
Hello Dorelia, My name is Jan DaPrato and my son Zachary Eise and I will be at the NIH the same week. We will be staying at the Children's Inn. He is 21...
... Hi Dorelia, I know it must be frustrating with a little one and the lack of verbal communication at that age. Hallie who is 8 often has trouble at night...
Hi everyone, Thanks for the replys and info, it is so hard to understand this and I am so lucky to have you all! I had my appt with Dr P Dent here in Ontario...
Dear Sherri and All, We are here ,and all is ok, but our dates have been moved up for our NIH trip to July 30-August 3rd. Sherri, will that be when you will...
... be ... tomorrow ... It ... but ... NOMID ... we ... apartment ... paperwork ... but ... to ... and ... done, ... legal ... NOMID ... as ... exempt ... but...
Hi all, I hope everyone is well and enjoying there summer. Karen, I am so excited for you about you adoption process. I have several friends who have...
Hi Becky. Our dates were changed also. I was so dissappionted because I was looking forward to meeting you and Karen D. I will still be having my eye surgery...
thankxs jenifer .i was hoping we can meet to but dr.g is out of town that week.so we had to change it.my headachees or doing better now i still have them but...
Hi Everyone, I just posted a nice message (files section) I got, I thought you all could relate. Thinks have been a little crazy and I hav'nt had much time to...
Hi to all, Well it has happened again, I thought one funeral would be enough for the year, but.... My dad died saturday! My poor mother is just devastated....
Oh my god Im so sorry to hear your news, I know how it feels to lose your dad as we lost mine 18 months ago now. My thoughts are with you at this sad time ...
Dear Sherri, I am so sorry about your father's sudden death- you have been through the worst times lately, and I wish that there was more we could do for you...
I'm sorry to hear about your Dad. I pray that you will be held up during this difficult time. We will be a the NIH with you. See you then, Camille Lieffers...
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