Hi Kate,
How is Alex feeling today? I do hope he gets to feeling better soon. Poor
little guy. I sure wish they would hurry up with this so called protocol. I
know things take time, but time is not what these children have much of.
Miranda has come down with pneumonia. No symptoms what so ever of it, no
fever, ears are fine. But she has a terrible cough. I took her to the doctor
and she is very crackily. She is now on an antibiotic. But she is still
coughing like crazy. She can't laugh without coughing. This will be her
second week out of school if it persists.
Anyhow, I agree with the fact that no one is responding too much with each
other. I know we are all busy, but if we took the time, maybe 5 minutes a
day. Just to say hi, how things are going, ect... I know it's easier said
then done. I will try.... I can't guarantee anything, but I will try..
Gerard, if you get this would you PLEASE let us know how you are!! I think
of all of you and wonder how you are all doing.
I worked out in the garden all day, and I am pretty tired. Early day
tomorrow. Hope everyone is doing well. Kiss all our angels for me!
Lots of love to all,
Sherri
----- Original Message -----
From: "John and Kate Barton" <jkbarton@...>
To: <nomidsyndrome@yahoogroups.com>
Sent: Friday, May 30, 2003 9:51 PM
Subject: RE: [nomidsyndrome] Hello


>
> Hi Karen, Terry and all,
> We too are waiting for the protocol to start. Alex is now not really
> responding to the large amount of steroids he is taking and to top that
his
> eyes are cloudy. which could be the new lenses or something behind the
> lenese. He only had his cateracts removed last spring. He is sleeping more
> these days getting up around 10-10.30am. and very tearful. We are also
going
> through a new insurrance change which is making me very uneasy.And they
are
> very strong in what they will aprove and not.
> I have come to the conclussion that if need be I will take him to the
Aetna
> office in SAn Antonio and make them tell him that he can't have the
> medication he requires.
> Hope everybody is doing well. and if you haven't gome to see "Finding
Nemo"
> go soom it is very well done and has humour for everybody.
>
> Love Kate
>
>
>
>
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