HI all,
Just to let you all know. Alex's blood work came back as mutation negative. I do
know that he has 11 of the 13 facets of the NOMID syndrome and we are therefore
carrying on treating him that way. Both John and I will be seeing Dr Warren
tomorrow to see what medication we should try Alex on next.
Karen I'm glad that your visit to the NIH went well, Hope Belinda updates us on
her visit.
regards to you all Katexxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx