Thankyou Kate for the update. We are so anxious to get our grandaughter
to go to NIH. We anxiously await the call. I am so glad that you
informed us (and very well I may add) about other mutations. Erikas
doctor is saying that Erika looks and acts more like a Muckle Wells
patient. (Which in her words was like a first cousin to Nomids. All fall
into the same catagory. Thanks ever so much again for the update.
~Jacie~
Hello!! I have not heard from anyone, and I just want to know that things are okay. Things are alright here, nothing spectacular. Miranda is having a hard time...
Mintcreek
mintcrik@...
May 8, 2000 2:16 am
HELLO EVERYONE!! I am just wondering how everyone is, I have heard from anyone! Hope things are well with all of you. I want to send a special birthday out to...
Mintcreek
mintcrik@...
Aug 12, 2000 6:28 am
Hi Everyone, Sorry I haven't written, been realllllllly busy! First of all, I want to wish Kate and a very special birthday!!!!!! Anyhow, things are ok here,...
mintcrik
mintcrik@...
Feb 19, 2002 3:27 am
Hi Everyone! Hope all is well with all of you, things are okay here, everything stays the same. Miranda is having a terrible time with her eyes today. What...
Jim & Sherri
mintcrik@...
Apr 2, 2003 3:21 pm
Dear Sheri, I am sorry to hear that Miranda is having such trouble with her eyes. I have been thinking a lot about the Bartons, and wonder how their trip to...
Hi to all and sorry for not writting sooner but our lovely computer is on the blink.We arrived in Washington on the 13th march to the wonderful noise of...
Thankyou Kate for the update. We are so anxious to get our grandaughter to go to NIH. We anxiously await the call. I am so glad that you informed us (and very...
Jacie, Have you phoned Janet Jones to make an appointment. the reason I ask this is because the NIH are not able to contact you .You have to ask if your child...
Hello Kate, My grandaughters rhumatologist is getting in contact with Janet Jones and then she (the doctor) will notify our daughter. We all have so much to...
Jacie, My understanding of the disease is that with NOMID you also get the meningitis and that no other member shows signs of the same mutation. Basically it...
Dear friends, We are back home from our trip to the NIH, and visiting relatives. It was worth thr trip, and very helpful for Seth. Everyone was so nice, and...
Hello to all! I know it has been too long since I've been here! Sorry!! :( Anyhow, Karen thank you so much for the brochures! I have handed all of mine out...
Sherri, That is all really interesting)especially being a medical person). Let us know if the surgery helps. ... Anyhow, ... in ... we ... he ... her ... ...
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