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nomidsyndrome · N.O.M.I.D/C.I.N.C.A. Syndrome
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Sherri   Message List  
Reply | Forward Message #377 of 2363 |
Re:Sherri

Hi Everyone!
Hope all is well with all of you, things are okay here, everything stays the same. Miranda is having a terrible time with her eyes today. What looks like pink eye to the school, is not.. Her eyes get like that periodically. We did go to Rochester for an evaluation with Dr. Friedman, we are still waiting to hear back from her.
My question, maybe directed to Kate, how do we read the email from "boom boom" I don't know if it's french, I don't know any other language but English. Do we have any translater programs on the site that would convert it to English?
Kate I will call you back! Sorry I couldn't talk when you called.
Take care..
Lots of Love to all,
Sherri
Wed Apr 2, 2003 3:22 pm

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mintcrik@...
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Forward 		Message #377 of 2363 |
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Hello!! I have not heard from anyone, and I just want to know that things are okay. Things are alright here, nothing spectacular. Miranda is having a hard time... 		Mintcreek
mintcrik@...
Send Email 		May 8, 2000
2:16 am

HELLO EVERYONE!! I am just wondering how everyone is, I have heard from anyone! Hope things are well with all of you. I want to send a special birthday out to...
Mintcreek
mintcrik@...
Send Email 		Aug 12, 2000
6:28 am

Hi Everyone, Sorry I haven't written, been realllllllly busy! First of all, I want to wish Kate and a very special birthday!!!!!! Anyhow, things are ok here,...
mintcrik
mintcrik@...
Send Email 		Feb 19, 2002
3:27 am

Hi Everyone! Hope all is well with all of you, things are okay here, everything stays the same. Miranda is having a terrible time with her eyes today. What...
Jim & Sherri
mintcrik@...
Send Email 		Apr 2, 2003
3:21 pm

Dear Sheri, I am sorry to hear that Miranda is having such trouble with her eyes. I have been thinking a lot about the Bartons, and wonder how their trip to...
sfokaren2003
Offline Send Email 		Apr 2, 2003
4:03 pm

Hi to all and sorry for not writting sooner but our lovely computer is on the blink.We arrived in Washington on the 13th march to the wonderful noise of...
Kate and John Barton
kate77494
Offline Send Email 		Apr 8, 2003
6:55 pm

Thankyou Kate for the update. We are so anxious to get our grandaughter to go to NIH. We anxiously await the call. I am so glad that you informed us (and very...
JMDUCA@...
jmduca
Offline Send Email 		Apr 9, 2003
1:33 am

Jacie, Have you phoned Janet Jones to make an appointment. the reason I ask this is because the NIH are not able to contact you .You have to ask if your child...
Kate and John Barton
kate77494
Offline Send Email 		Apr 9, 2003
2:07 pm

Hello Kate, My grandaughters rhumatologist is getting in contact with Janet Jones and then she (the doctor) will notify our daughter. We all have so much to...
JMDUCA@...
jmduca
Offline Send Email 		Apr 10, 2003
4:21 am

Jacie, My understanding of the disease is that with NOMID you also get the meningitis and that no other member shows signs of the same mutation. Basically it...
Kate and John Barton
kate77494
Offline Send Email 		Apr 10, 2003
5:37 am

Dear friends, We are back home from our trip to the NIH, and visiting relatives. It was worth thr trip, and very helpful for Seth. Everyone was so nice, and...
sfokaren2003
Offline Send Email 		Apr 21, 2003
8:15 pm

Hello to all! I know it has been too long since I've been here! Sorry!! :( Anyhow, Karen thank you so much for the brochures! I have handed all of mine out...
sherrip12s
Offline Send Email 		May 4, 2008
12:54 am

Sherri, That is all really interesting)especially being a medical person). Let us know if the surgery helps. ... Anyhow, ... in ... we ... he ... her ... ...
mmkcgriffin
Offline Send Email 		May 4, 2008
2:39 pm
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