Hi Karen,
Just thought I would write and let you know how our trip was with the NIH.
It was BUSY!!!! We had hopes to sight see as well, like the Smithsonian, the
White house, ect. We were lucky that we found a store to shop at! To drive
around town is interesting, there is always traffic, since your staying at
the Inn, there is a shuttle that takes you to the store to get groceries,
and it;s in a little plaza with a CVS drug store, not sure what else is
there, those are the only 2 places we shopped at. One doctor did give us
directions to the mall, which was nice, we found a " Build a bear" store, so
after a long day of testing, Miranda got to pick a stuffed animal and stuff
it and dry it and make a birth certificate and give her bear a name. It was
fun, we also ate at a restaurant in the mall called Slades? I believe that
was the name, the food was very good.
The week of testing was little confusing, but so well worth it. Most of the
time Mirandas lunch was delivered to another floor, they have to change the
appointments as doctors are available. They were all very nice and
understanding. Very interested in what you had to say.

As far as explaining your childs illness, I know what you mean. A lot of
older people around me, say well the old wifes tale is...... and on and on
they go. A lot of people don't understand (most of the time I don't either!)
I believe there is a reason for everything, and these children are here for
a reason, I would'nt change anything about Miranda (except to cure her) but
she has made us all a lot stronger and wiser. She also brings joy to all our
lives and everyone she meets. She is so well liked in school, I know she is
sick, and if people choose to be ignorant then so be it. She brings us so
much love and that is all I need to say to anyone. I have at times said,
it's too complicated and I would rather not talk about it.
I wish you the best when you do go, you will not be sorry and it will not be
a waste of time. The Childrens Inn is wonderful! They toy room was a real
treat for Miranda when were done testing. She really enjoyed going there.
It's funny, you seem to immediatley bond with all the parents you meet
there. We are all there for our children and we are all sharing the same
hardships and concerns. I wouldn't stay anywhere else when we do go back.
I attended the conferece too, and I hope we can get more children to be
tested, because I believe their futures are looking a little brighter!
Good luck to you, and keep us posted as you go.
Take care
Lots of love to you all,
Sherri & Miranda