Hi Aisling
hope your campaigning gets results.
We are all well here.
My middle son Joshua is in London at the moment and is off to venice and paris next week.
Tom's latest LP had his best csf results since he started treatment, so we are keeping him at 100mg.
He is getting an award for junior lifesaver of the year at our local surf club
and is still surfing most days even though the weather is very cold.
There's been heaps of whales and dolphins lately, and even a shark attack on a surfer at a beach 10 min from here.
I try not to think about that!
Hope Jack is travelling well at the moment and hi to all our Nomid families.
Louise
(Tom in Australia's mum)
----- Original Message -----
From: aislingmcnSent: Wednesday, July 08, 2009 7:48 AMSubject: [nomidsyndrome] HelloooooooooHi there everyone-greetings from Ireland...
Happy birthday Zach....
Eveyone I'm sooo busy at the moment as I am running a campaign against the cutbacks in Crumlin....I'm doing interviews all the time and having meetings etc with all sorts of people to try and get our children's hospital running the way it should be-its exhausting but I feel we are getting somewhere at last.
I think of you always and am sorry I've not been around....talk soon.Lots of love Aisling & Jack xxx