Hello everyone and thank you for all of your kind words.  Zach did have a great 25th B-day.  He was more at ease with the interview than myself; a real natural. Sue was great although we had some challenges with our dog deciding to bark, cough or lick at the wrong time.  She is very old and it was too hot; upper 90"s to make her stay outside.

     

We did see a new Neuro-Ophthalmologist that knows Dr. Fitzgibbons at the NIH and will contact him regarding Zach's vision.  He has several options to slow the muscle movement affecting the rapid movement Zach has, which may improve his acuity.  He came here form Detroit and has seen two NOMID patients.  His name is Dr. Van Stavern.  Has anyone in our group seen him?  I liked his bed side manner and seems very professional.

 

I attached a photo of Zach on his big 25th B-day.

 

I hope everyone has a safe and healthy summer!

 

Take Care,

Jan