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nomidsyndrome · N.O.M.I.D/C.I.N.C.A. Syndrome
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Reply | Forward Message #2194 of 2363 |
Thanks!

Hello again. It took a bit to answer you but my partner had an accident at work
and had to stay in hospital. "devil doesn`t sleep" says a German idiom ...

Thanks for your detailed answer mail, Karen! It really helped me but I still
don`t know how things could work in Jan`s body ... I`ll try to be more aware of
many circumstances that could affect his NOMID flares. There is definitely
something going on with Jan`s ears. He has had an otitis on both ears for almost
a month now. We gave him antibiotics but they weren`t good for his bowels.
Tomorrow Jan has his blood tests again. His last CRP was negative but his white
blood cells were still 18 000.

Good to hear that Jack is well and could spend Easter at home!

4 shots a day for Alex? I thought 2 are the most you could have! What`s his dose
at the moment?

Anyhow - Happy Easter to everybody and all the best!

Daniela




Mon Apr 13, 2009 4:45 pm

daniela.spalt
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Message #2194 of 2363 |
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Thanks to everybody! It`s great to know that there are people who understand and can give us precious advices ... Jan is the first NOMID child in Austria which...
daniela.spalt
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Feb 5, 2009
12:21 pm

Daniela, I am not sure if you are looking for doctors interested in autoinflammatory disorders in Austria, but this link has a worldwide list of members from...
sfokaren2003
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Feb 6, 2009
4:19 am

Ein schonen Guten Morgen Daniela, Leider kenne ich keine Familien in Österreich, aber jedoch aus Schweiz und Deutschland. Sogar haben wir uns mal mit Familien...
Clara & Gerard Noordhof
gerardnoordhof
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Feb 6, 2009
8:08 am

Hello again. It took a bit to answer you but my partner had an accident at work and had to stay in hospital. "devil doesn`t sleep" says a German idiom ... ...
daniela.spalt
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Apr 13, 2009
4:47 pm
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