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nomidsyndrome · N.O.M.I.D/C.I.N.C.A. Syndrome
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Hi everyone & a very happy Easter to you all...   Message List  
Reply | Forward Message #2192 of 2363 |
Hi all-
I have been reading but haven't had much time -things are quite good with Jack
at present-fingers crossed it stays like this!!
He has never been home for Easter yet in four years so am hoping 4th time
lucky!! He has been really good for the last two months- a very long time for
Jack.
I hope things improve for you Daniela and I will e-mail you back privately and
I'm sorry it has taken me so long-things seem to have improved a bit for you at
last but still he is having break through symptoms-would your docs now consider
a little prednesol (steroid)in conjunction with the anakinra??
Bekky how are you? I am sorry to hear of your persistent headaches and good luck
with your study in the summer.
Great news Karen that Seth is doing so well on the new drug-long may it last!!
Kate good to "see" you...
Michelle hello and how are you and yours??
Hello to everybody else too and hope you and your children are well and hope you
all have a very Happy Easter-hope the Easter bunny visits!!
Lots of love Aisling xxx




Wed Apr 8, 2009 10:38 pm

aislingmcn
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Message #2192 of 2363 |
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Hi all- I have been reading but haven't had much time -things are quite good with Jack at present-fingers crossed it stays like this!! He has never been home...
aislingmcn
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Apr 8, 2009
10:38 pm

Happy Easter to you all!   We will be at the NIH from 25th April for a while.   Kind regards Colin, Debra, Oliver & Tilly ... From: aislingmcn...
COLIN BAILEY
colin375477
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Apr 9, 2009
8:43 am

Hello everyone,   I hope everyone had a nice Easter.  I have been reading all the e-mails but have been dealing with Zach battling kidney stones.  Poor guy,...
Jan DaPrato
jand71054
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Apr 19, 2009
4:36 am

Jan, I am sorry to hear that Zach is battling kidney stones-how miserable! I hope he gets better soon. Do they think it is related to NOMID or calcium intake...
sfokaren2003
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Apr 20, 2009
3:10 am

Hello all, I am sorry to hear about Zach's kidney stones as well. I hear that they are extremely painful and our kids suffer enough as it is. Johnny (my...
prissymarikochan
prissymariko...
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Apr 20, 2009
12:33 pm
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