Hello to all,

    We are home fanaly after staying an extra 5 days because Tiffanie got an headache after her spinal tap. She is doing so well he bone  are at an age of a 15 year old and she i only 13 years old. she is 5feet and 5 inches tall now. she want hae to go back until next year now.

  I' m thanking about doing the other study that Dr. G has going on. She said that there are three people on it so far. I dont remeber the name of the medican but you get and shot every two monthe insted of everyday. Dr. G and i want to see if it would work for me becuse i still deal with the headaches. I found out this trip why i have them,it is because i have scare tusing at the bottum of my head and all over my brain too. It is where the brain is spouse to azorb the spinal fluid. mine dont azorbe the fluid verry well because of the scare tuse and also i still inflation on my brain from where the scar tuse is., So theay wan to see it it will help me.

 Dr. G said, that the others that started this studyhad no existing probluns.

 If any one is on this study plase let me know how it is.

 I have to realy thank about it because there s a lot of flying i have to do. and with me living in Washington state it is a long ways almost 5000 miles round trip. I would like your guys point a view. Tiffanie will not be doing this study fright now maybe later on.

 thanks so much

 Becky Bissett