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nomidsyndrome · N.O.M.I.D/C.I.N.C.A. Syndrome
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Jack update   Message List  
Reply | Forward Message #1751 of 2363 |
Re: [nomidsyndrome] Jack update

sorry to hear Jack's not travelling well.
I hope you're able to get some help at GOS on the 28th.
 
Louise
 
Tom in Australia (but currently in London)'s Mum
 
 
 
----- Original Message -----
From: aislingmcn
Sent: Wednesday, July 09, 2008 6:59 AM
Subject: [nomidsyndrome] Jack update

Hi all,
Haven't been in contact for a while,Jack has been sick and in and out
of hospital.
He has had to go back on 5 mgs of prednesol as his symptoms were very
bad and the 25mgs of Anakinra wasn't really doing the job.He is on
2.5mgs per kilo.
We got our date at long last for GOS so can't wait to go...its for the
28th July,the day before Jack's 3rd birthday...
Anyway hope you're all keeping well,wish We could just pop over to The
NIH to join you all and get to meet you.
Maybe we will when he is a bit better....

Ciao for now
Aisling,Molly & Jack xxx
Wed Jul 9, 2008 9:12 am

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Forward 		Message #1751 of 2363 |
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Hi all, Haven't been in contact for a while,Jack has been sick and in and out of hospital. He has had to go back on 5 mgs of prednesol as his symptoms were... 		aislingmcn
Offline Send Email 		Jul 8, 2008
8:59 pm

Hi Aisling   Good luck with your appointment in july, i really hope that prof woo can help jack, she has looked after charlie since he was very small less...
karen moore
karenmoore30
Offline Send Email 		Jul 8, 2008
9:24 pm

sorry to hear Jack's not travelling well. I hope you're able to get some help at GOS on the 28th. Louise Tom in Australia (but currently in London)'s Mum ... ...
Louise Keatley
speech58
Offline Send Email 		Jul 9, 2008
9:12 am

Happy Birthday to Jack. Louise ... From: karen moore To: nomidsyndrome@yahoogroups.com Sent: Wednesday, July 09, 2008 7:24 AM Subject: [Norton AntiSpam] Re:...
Louise Keatley
speech58
Offline Send Email 		Jul 9, 2008
9:13 am

oops I meant happy birthday to charlie (and for jack on the 29th ) louise ... From: Louise Keatley To: nomidsyndrome@yahoogroups.com Sent: Wednesday, July 09,...
Louise Keatley
speech58
Offline Send Email 		Jul 9, 2008
10:04 am

Hi Louise,   Thanks for your birthday message for Charlie, got there in the end !   Karen xxx ... From: Louise Keatley <louise@...> Subject: Re:...
karen moore
karenmoore30
Offline Send Email 		Jul 9, 2008
10:47 am
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