We live in Bakersville, North Carolina and should be checking into the Children's Inn Sunday evening.  Lee is 16.  This visit will be his 4th year.  He was actually the first NOMIDS patient at NIH and he is the one that they discovered the misspelling in.  I hope that you get to stay and look forward to meeting you!

---

From: "colin375477" <colinbailey828@...>
Reply-To: nomidsyndrome@yahoogroups.com
To: nomidsyndrome@yahoogroups.com
Subject: [nomidsyndrome] Re: Lee Parker
Date: Mon, 21 Jan 2008 17:02:55 -0000

Dear Marie

Tilly is still here at the Inn and we hope, pending extension of stay
this week, to still be here so hopefully we can meet. Where are you
from? How old is Lee?

You can read about Tilly at - www.tillysappealfund.com

Kind regards

Colin (Tilly's Dad)

--- In nomidsyndrome@yahoogroups.com, "prissymarikochan"
<marikochan68@...> wrote:
>
>
> Hello All!!
>
> I am Lee Parker's mom, Marie. I don't post onto the NOMID site
> typically but do read most of your posts. Lee and I will be going to
> NIH next week (the week of 1/28). I was curious if anyone else is
> scheduled that week as well.
>
> Thanks,
>
> Marie
>