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nomidsyndrome · N.O.M.I.D/C.I.N.C.A. Syndrome
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Lee Parker   Message List  
Reply | Forward Message #1548 of 2363 |
Lee Parker

Hello All!!

I am Lee Parker's mom, Marie.  I don't post onto the NOMID site typically but do read most of your posts.  Lee and I will be going to NIH next week (the week of 1/28).  I was curious if anyone else is scheduled that week as well.

Thanks,

Marie
Mon Jan 21, 2008 1:30 pm

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prissymariko...
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Forward 		Message #1548 of 2363 |
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Hello to Everyone! I have not been back on the NOMID site until recently. My son, Lee Parker, is one of the children with a milder case of NOMID. However, he... 		Marie Parker
marikochan68
Offline Send Email 		Oct 3, 2003
12:00 pm

Hello All!! I am Lee Parker's mom, Marie. I don't post onto the NOMID site typically but do read most of your posts. Lee and I will be going to NIH next week...
prissymarikochan
prissymariko...
Offline Send Email 		Jan 21, 2008
1:30 pm

Dear Marie Tilly is still here at the Inn and we hope, pending extension of stay this week, to still be here so hopefully we can meet. Where are you from? How...
colin375477
Offline Send Email 		Jan 21, 2008
5:02 pm

We live in Bakersville, North Carolina and should be checking into the Children's Inn Sunday evening. Lee is 16. This visit will be his 4th year. He was...
Marie Parker
prissymariko...
Offline Send Email 		Jan 21, 2008
5:37 pm

Hi Marie, Zach and I met you at the very beginning and we shared a room at the hospital. I remember how quickly Lee's rash returned being off the Anakinra....
Jan DaPrato
jand71054
Offline Send Email 		Jan 22, 2008
3:22 am

Lee is doing very well. He has an occasional problem with migraines but overall he is doing great. His growth has been extraordinary. He has almost caught up...
Marie Parker
prissymariko...
Offline Send Email 		Jan 22, 2008
1:37 pm

Hi there everyone. I hope you are all doing well. For Mr. Parker, I don't know of anyone who will be at the NIH that time you are there. Kayla, Carlos and I...
Dorelia Rivera-Martinez
dorirmtz
Offline Send Email 		Jan 22, 2008
6:17 am
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