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nomidsyndrome · N.O.M.I.D/C.I.N.C.A. Syndrome
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Alice Lieffers   Message List  
Reply | Forward Message #1543 of 2363 |
Re: [nomidsyndrome] Alice Lieffers

hello carille
  My daughter Tiffanie and I are going back that weed too. We will be there on feb 18th -23 I thank i meet you guys last time we wore there.Tiffanie and I both have nomid syndrome .  we will be at the childens inn.take care .see you there becky

Terry & Camille Lieffers <lieffers@...> wrote:
Happy New year to all!
We have not posted lately but have enjoyed reading all the news form others.  Alice is doing well, except for today when she woke up with the stomach flu :-(   Her niece and nephew had it last week.  We are scheduled to go back to the NIH the week of February 19.  Anyone else going?  I always hope to run into Zach and his Mom.  We are about a month off.  Since Alice is 22 years old now it would be good to meet an "older man!"  Too bad we don't live closer.....
 
Anyway, blessings to all.
Camille Lieffers

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Sat Jan 19, 2008 9:07 pm

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beckybakko
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Forward 		Message #1543 of 2363 |
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Greetings to all, We talked to Janet Jones at the NIH on Friday. She says things are progressing to start having children start coming out. They have... 		TERRY & CAMILLE'S MAIL
custer502000
Offline Send Email 		Oct 5, 2003
2:43 am

Hi Camille, Your right about the long wait, I have been wondering the same thing about when we would be called too. We were there last January 12. We are...
Mintcreek
mintcrik@...
Send Email 		Oct 6, 2003
2:10 am

we saw you sent an email last night but there was no text written....something must have happened....please try again. Thanks ... Outgoing mail is certified...
TERRY & CAMILLE'S MAIL
custer502000
Offline Send Email 		Oct 6, 2003
10:52 am

I will talk to you soon. Thanks for calling this weekend Camille. We need to get together-WITHOUT kids. I would love to talk to you about the NIH process,...
Traci Gundy-Anderson
putzztwins
Offline Send Email 		Oct 6, 2003
2:09 pm

Happy New year to all! We have not posted lately but have enjoyed reading all the news form others. Alice is doing well, except for today when she woke up...
Terry & Camille Lieff...
custer502000
Offline Send Email 		Jan 13, 2008
5:59 pm

hello carille My daughter Tiffanie and I are going back that weed too. We will be there on feb 18th -23 I thank i meet you guys last time we wore...
Becky Bakko
beckybakko
Offline Send Email 		Jan 19, 2008
9:07 pm

Hello everyone, We have to go back in 3-4 months, due to Zach's ongoing concerns. As far as his avascular necrosis, it has remained localized in his right...
Jan DaPrato
jand71054
Offline Send Email 		Jan 19, 2008
11:44 pm

Mike and Kieran are getting to the NIH this coming Tuesday 1/22. ... concerns. As far as his avascular necrosis, it has remained localized in his right femur....
mmkcgriffin
Offline Send Email 		Jan 20, 2008
4:17 am

Zach, I am diggin the goatee!! ... concerns. As far as his avascular necrosis, it has remained localized in his right femur. He had a MRI on his left leg and...
mmkcgriffin
Offline Send Email 		Jan 20, 2008
4:22 am

Hi Becky, That is good news that you and Tiffanie will be there too. We will look forward to seeing you, again. Camille...
Terry & Camille Lieff...
custer502000
Offline Send Email 		Jan 19, 2008
9:14 pm
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