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Hi Everyone
Merry Xmas from Louise & Tom in Australia,
Tom has just passed 2 years since starting Anakinra and is still doing really well.
He is doing surf patrol at the beaches this summer and is fit and strong. We have a LP booked in January to see if he needs to increase his dose, but all his other checks have been good.
I read every email but I'm not too good at responding.
Best wishes to everyone for 2008
Love
Louise (Tom in Australia's Mum)
----- Original Message -----From: sfokaren2003Sent: Monday, December 24, 2007 2:15 AMSubject: [nomidsyndrome] Merry Christmas! Seth and I will be at the NIH the week of Feb 24Dear All,
It sounds like the tiem to be at the NIH is Jan 6th! Wow, I hope you
all have a good time, and I wish we were there then too. Becky, to
bad we will not be at the NIh the same week as you, I tried to get
that week, but Nikki said it was already too booked when I called a
few weeks ago. Maybe we will see you all again on another trip.
I have been delayed with the final revisions of the brochure for the
NOMID alliance, but hope it will be printed soon. I am still awaiting
a few updates on some things from one of the doctors, but in the end,
having the most accurate details will be worth the wait.
Thanks for all of you and your support! Have a Merry Christmas and a
Happy New Year!
Karen DUrrant
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