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nomidsyndrome · N.O.M.I.D/C.I.N.C.A. Syndrome
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visit to the nih on the 6th 08   Message List  
Reply | Forward Message #1532 of 2363 |
Re: [nomidsyndrome] visit to the nih on the 6th 08

hello to all.  My daughter and I will be going back to the nih feb 18022 is anyone going then.wow  there is alot of you going back I hope everyting gose well for all of you. I'm still dealing with the headaches and thay are not doing that well latly.The nih is moving me up slowly on the diamox but it herts so bad some times i can't thank shrigh.I'm going to be starting school soon so i hpie thay get better soon.My daughter itffanie is doing so well ,I cann't beleaveittake care becky

dstcrx <dstcrx@...> wrote:
Hi just wondering if any one will be at the NIH on the 6th on Jan 08
as we will be there with Fynley for a week, if so it owuld be great to
meet up with you.

and may i wish everyone a merry christmas and peaceful new year to you
all.

Karen moore i will give you a call when i get back so we can catch up

lisa x



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Fri Dec 21, 2007 2:49 am

beckybakko
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Message #1532 of 2363 |
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Hi just wondering if any one will be at the NIH on the 6th on Jan 08 as we will be there with Fynley for a week, if so it owuld be great to meet up with you. ...
dstcrx
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Dec 16, 2007
6:05 pm

Lisa Tilly will still be here and I have returned back this last Thursday so look forward to meeting you all on the 6th January! Happy Christmas Regards Colin...
COLIN BAILEY
colin375477
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Dec 16, 2007
8:36 pm

We will be there January 8 - 11.? Would love to meet up with you. Kathe Barchus and Isaac (3.5 yrs with PFS unknown etiology) ... From: dstcrx...
kathebarch@...
trakylian
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Dec 17, 2007
2:51 am

Hello everyone, Zach and I will be at the NIH Jan 6th - 10th. We will be arriving at the children Inn, Sunday evening late. Looking forward to meeting all...
Jan DaPrato
jand71054
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Dec 17, 2007
4:43 am

hello to all. My daughter and I will be going back to the nih feb 18022 is anyone going then.wow there is alot of you going back I hope everyting gose well...
Becky Bakko
beckybakko
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Dec 21, 2007
2:49 am
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