Great news karen, what wonderful news how is the baby and how is lucas
doing, and also how are you. Im sure your very busy and got yur hands
full now. Thanks for yur reply im sorry i havent been in touch before
but as you know things have been pretty tough.

Anyway we are going back to the NIH to see Dr Golbach and Dr kastner,
so hopefully we will be able to move on a little further with fyns
treatment and diagnosis, however Dr Goldbach says we may never have a
clear diagnosis, so we will have to wait and see.

We will be there from the 6th of jan 08 for a week, last time we
visited we met zach and his mummy which was great, im not sure if any
one is there in that week but please let us know if they are as it
would be great to meet others.

hello to eveyone, lisa (fyns mum)