Thank you so much for the response that I received today from several of you
regarding the
upcoming Art Festival that will benefit the NOMID Alliance. So far I have heard
from Michael
Atkinson, Tiffanie and Becky Bakko, Seth Durrant, Kieran Griffin, Charlie Moore,
and Hallie
Earnhart. This is a wonderful start. Thank you all so much.

If you all know of anyone that may not be on the yahoo group that would be
interested in
participating please let me know. I wish I could just ask the NIH for contact
information, but I
assume that answer would be NO due to privacy issues. If any of you have email
addresses,
phone numbers, addresses, etc.. that would be very helpful. I tried to use some
of the email
addresses off the nomidsyndrome family site, but many of those email addresses
are old.
Whatever help you can provide would be great.

Just email me at earnhart@... with any information you may have.

Thank you,

Jennifer Earnhart