I banned him a couple of days ago. I wonder if there should be a policy
where new members either post there story/interest to group or that they
post to me. I noticed a few email addresses that didn't connect to me or
that I had not seen posted. I understand that we do have medical staff who
use this site to get more clues into the disease but I think I know those
members.
While we are on the topic of the group I was wondering if we post questions
to the group even if somebody has given that member an answer off line. I
think that some of the members might be having the same symptoms. Also it
gives the medical staff more information in trying to understand NOMID as a
disease

Regards Kate

-----Original Message-----
From: nomidsyndrome-owner@yahoogroups.com
[mailto:nomidsyndrome-owner@yahoogroups.com] On Behalf Of sfokaren2003
Sent: Monday, July 09, 2007 10:38 AM
To: nomidsyndrome-owner@yahoogroups.com
Subject: Re: Spam on the nomidsyndrome group. Please remove! Also, Hello to
you all!

Dear Kate and John,

Do you think that we can do anything to get rid of Sexy biker chick a
few weeks ago, or this latest spam on the nomidsyndrome group? It is
not the right place for these people to post.

I hope that you all are doing well. Nate is at the NIH this week with
Seth, and there are 3 other NOMID families there, but he has not told
me all of them yet except Lee Parker.

We are officially a tax exempt non-profit, and awaiting grat approval
from Regeneron for funds to help with a CAPS syndromes brochure
(Chropyrin-Associated Periodic fevers) which we will get out this year
to targeted specialties of doctors. Any suggestions would be great!
Also, if you are willing to allow use of any photo of Alex's rash as a
baby, that would be great.

I hope Alex is doing better, and that things are going well.

Have a great week!

Karen Durrant

--- In nomidsyndrome@yahoogroups.com, "bikerguyz0005"
<bikerguyz0005@...> wrote:
>
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date a sugar daddy or sugar baby? Check out this club, join for FREE:
> http://sugarladdyee.googlepages.com/sexysugarclub.htm
>