Dear Kate,

Thanks so much to you, and Alex for being willing to let us use his
baby photo for the brochure. It will make a huge difference for
doctors to see what it looks like on a newborn. I agree that I would
love to see this not be a last diagnosis too, and since symptoms are
present at birht, or shortly after, there is no reason they have to
suffer so long before getting the right help. I truly hope that
earlier diagnosis and treatment will help prevent the onset of the
debilitating affects from NOMID. Thanks ofr all that you have done,
and for your support.

Karen