I mean the 17th - 23rd.
Kathe


-----Original Message-----
From: mmkcgriffin@charter.net
To: nomidsyndrome@yahoogroups.com
Cc: Kate Barton <jkbarton@ix.netcom.com>
Sent: Mon, 9 Jul 2007 10:34 pm
Subject: Re: [nomidsyndrome] RE: Spam on the nomidsyndrome group. Please remove! Also, Hello to you all!

I will be in DC July 21. Anyone else?

---- Kate Barton <jkbarton@ix.netcom.com> wrote:
> I banned him a couple of days ago. I wonder if there should be a policy
> where new members either post there story/interest to group or that they
> post to me. I noticed a few email addresses that didn't connect to me or
> that I had not seen posted. I understand that we do have medical staff who
> use this site to get more clues into the disease but I think I know those
> members.
> While we are on the topic of the group I was wondering if we post questions
> to the group even if somebody has given that member an answer off line. I
> think that some of the members might be having the same symptoms. Also it
> gives the medical staff more information in trying to understand NOMID as a
> disease
>
> Regards Kate
>
> -----Original Message-----
> From: nomidsyndrome-owner@yahoogroups.com
> [mailto:nomidsyndrome-owner@yahoogroups.com] On Behalf Of sfokaren2003
> Sent: Monday, July 09, 2007 10:38 AM
> To: nomidsyndrome-owner@yahoogroups.com
> Subject: Re: Spam on the nomidsyndrome group. Please remove! Also, Hello to
> you all!
>
> Dear Kate and John,
>
> Do you think that we can do anything to get rid of Sexy biker chick a
> few weeks ago, or this latest spam on the nomidsyndrome group? It is
> not the right place for these people to post.
>
> I hope that you all are doing well. Nate is at the NIH this week with
> Seth, and there are 3 other NOMID families there, but he has not told
> me all of them yet except Lee Parker.
>
> We are officially a tax exempt non-profit, and awaiting grat approval
> from Regeneron for funds to help with a CAPS syndromes brochure
> (Chropyrin-Associated Periodic fevers) which we will get out this year
> to targeted specialties of doctors. Any suggestions would be great!
> Also, if you are willing to allow use of any photo of Alex's rash as a
> baby, that would be great.
>
> I hope Alex is doing better, and that things are going well.
>
>
> Have a great week!
>
> Karen Durrant
>
> --- In nomidsyndrome@yahoogroups.com, "bikerguyz0005"
> <bikerguyz0005@...> wrote:
> >
> > Yahoo! Groups - Date a sugar daddy or sugar baby.Would you like to
> date a sugar daddy or sugar baby? Check out this club, join for FREE:
> > http://sugarladdyee.googlepages.com/sexysugarclub.htm
> >
>
>

---

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