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nomidsyndrome · N.O.M.I.D/C.I.N.C.A. Syndrome
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Seth's NIH trip changed -Dr. G. not at the NIH Aug 12-16/ Re: new I   Message List  
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Re: [nomidsyndrome] Seth's NIH trip changed -Dr. G. not at the NIH Aug 12-16/ Re: new Il-1 drugs

Hi Everyone,
 
Thanks for all the info on possible new treatments.Karen.
 
 I'm glad the pregnancy is moving along OK. Three boys don't make you too crazy!, but we know lots of people with 2 boys and then a girl.
 
I'm glad there may be other drug options as Tom's CSF symptoms are still not well controlled. Otherwise he's doing fantastically.
 
I'm still waiting on my immunoglobulin treatment, but now have a start date of 18th June.
 
Thank you to everyone that gave me feedback re peripheral neuropathy in their families.
 
Maxine, how are you & Glenn going?.Did things get sorted with school? We may be coming to Melbourne these July holidays. If so I will let you know. We would love to meet. I think of Glenn often.
 
Regards to you all
 
Louise
Tom in Australia's Mum
 
 
Thu May 31, 2007 10:43 pm

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Forward 		Message #1431 of 2363 |
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Hello to all, We got called this week by Nikki to change Seth's follow up trip to the NIH, since Dr. Goldbach-Mansky will NOT be at the NIh the week of AUgust... 		sfokaren2003
Offline Send Email 		May 31, 2007
4:35 pm

Hi Everyone, Thanks for all the info on possible new treatments.Karen. I'm glad the pregnancy is moving along OK. Three boys don't make you too crazy!, but we...
Louise Keatley
speech58
Offline Send Email 		May 31, 2007
10:43 pm

Hi Louise and Everyone I know it's been awhile, but I do read all messages that come in. Glenn has been pretty busy; he now has hearing aids and an FM pack...
Wayne Hand
HANDANDHAND@...
Send Email 		May 31, 2007
11:58 pm
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