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nomidsyndrome · N.O.M.I.D/C.I.N.C.A. Syndrome
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Reply | Forward Message #1427 of 2363 |
Hello to everone
   I just want to se how everone is doing. My daughter tiffanie is doing very well .I still having the headachesand a little heal pain now.but  doing good for the most part. We are going back to the NIH July 29- Augs. 2nd if anyoneis going back that time let me know . We will be staying to the INN.Take care evecky

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Thu May 24, 2007 10:19 pm

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beckybakko
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Forward 		Message #1427 of 2363 |
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Hello to everone I just want to se how everone is doing. My daughter tiffanie is doing very well .I still having the headachesand a little heal pain now.but... 		Becky Bakko
beckybakko
Offline Send Email 		May 24, 2007
10:19 pm

Hi Becky, My daughter Alice and I will be at the NIH the same week as you. Alice is 22 now and I think it will be great to meet you and your daughter. See...
lieffers
custer502000
Offline Send Email 		May 26, 2007
3:00 pm

hello thats cool .are you staying a the childens inn .we are .take carrebecky lieffers <lieffers@...> wrote: Hi Becky, My daughter Alice and I will be at...
Becky Bakko
beckybakko
Offline Send Email 		May 29, 2007
7:20 pm

Hello eveyone, I'm writing to see if anybody is still having headaches and if so,what are you doing for them. I'm still having bad headaches. I taking a little...
Becky Bakko
beckybakko
Offline Send Email 		Sep 28, 2007
2:21 pm

just joined the group.just my son and i both have FCAS and 2 sisters. we live in north ga and travel to the NIH twice a year....
mrfirefighter6417
mrfirefighte...
Offline Send Email 		Dec 28, 2007
4:12 pm

Hello to all,   Ihaven't writen in awile.My daughter is doing extrmly well. I have been doing good for awie ,I had no headaches for a longtime. but latly i...
Becky Bakko
beckybakko
Offline Send Email 		Aug 14, 2008
12:02 am

hi becky, sorry to hear your headaches are back, but wanted to say congratulations on getting your ged and going to college. it's such blessing you've been...
Louise Keatley
speech58
Offline Send Email 		Aug 14, 2008
9:39 am

Thanks louise,   I give thanks to the anakinra for that.If we didn't have it my daughter and i would be toldally bind and deat by now. Thanks agian, Becky ......
Becky Bakko
beckybakko
Offline Send Email 		Aug 14, 2008
5:51 pm

Dear Becky, Can you e-mail me your phone number (you can just send the message to me and it will not go onto this open forum) so I can call you if you like to...
sfokaren2003
Offline Send Email 		Aug 18, 2008
5:45 am

Karen,  I will e-mail you with my phone number. thanks.becky ... From: sfokaren2003 <sfokaren2003@...> Subject: [nomidsyndrome] Re: hello becky To:...
Becky Bakko
beckybakko
Offline Send Email 		Aug 18, 2008
10:59 pm

Karen,  I will e-mail you with my phone number. thanks.becky ... From: sfokaren2003 <sfokaren2003@...> Subject: [nomidsyndrome] Re: hello becky To:...
Becky Bakko
beckybakko
Offline Send Email 		Aug 18, 2008
11:00 pm
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