Hi everyone,
The insurance company just approved the akanira for ashleigh today.
The only problem now is that the medicine comes in prefilled syringes
that aren't marked, so the nurse has to talk to the pharmacy to get
vials so that the dose can be measured out. I am so nervous about
giving daily injections~! Anyone else's child taking the akanira?
How has it helped?
Shannon
Hi everyone, The insurance company just approved the akanira for ashleigh today. The only problem now is that the medicine comes in prefilled syringes that...
Hi there, I think it depends on the child as to how they react to the anakinra most of the time it is fantastic and works within 24 hours, it however doesnt...
Karen, The anakinra did not work for Isaac either. He is currently on once a month IV dose of Infliximab (Remicade), once a week shot of Methotrexate, daily...
Kathe, thanks for your mail, I just dont understand how the children are all so different but being given very similar treatment, how is issac I hope he is...
Karen, So sorry I did not get back to you sooner. In all our craziness, we decided to add a puppy to our lives so I am not on the computer too often. Isaac's...
thanks hope the puppy is not too much trouble, charlie was taken off of the anakinra last friday and in the meantime they have just increased his prednisolone...
Karen, Yes, Isaac is on a monthly IV of the anti TNF (tumor necrosis factor) called Infliximab (or Remicade). I think there is a drug that is a weekly...
Hi everyone, Charlie has chicken pox, it seems very mild he only has about 8 spots on his tummy/back some in his hair and behind his ears and back of his neck....
Hi Karen, Tom had a severe case of chicken pox at about 9 months of age. He was covered with spots and looked liked a chocolate crackle and used to rub his...
thanks everyone, charlie seems ok with it, they have prescribed an anti viral drug similar to zoviarax which ill collect later and give to him their main...
just seen prof woo at great ormond st and we are off of the anakinra as of now, but upping his prednisolone as a holding method until she decides what to try...
Hi Shannon, Congrats! getting the approval is a huge step! Michael has been on anakinra just a little over a year now and I have nothing but good to say, for...
... Miranda has been on anakinra for almost 3 years (january will be 3 years) I don't know where we would be without the NIH! Yeah, it's a hassle going all the...
It's been a while since we've written. Hope everyone is doing well. Shannon, The Anakinra is a "miracle drug", I'm sure your experience will be hard at first....
Maybe I shouldn't have been so eager to say Anakinra works so well. I'm aware that it hasn't worked the same on everyone. I just pray that for those that it...
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