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nomidsyndrome · N.O.M.I.D/C.I.N.C.A. Syndrome
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Reply | Forward Message #1157 of 2363 |
RE: [nomidsyndrome] going to NIH

Alex and I will be up at the NIH on the 13th for a week. This is his 2.5year visit. doesn't time fly. where would be our children without the help and support of this trial.
 
Hope all are well and enjoying the summer, my kids return to school on the 10th. figure! Managing to get Alex down to 3mg steroids with no problems. hopefully this time we will get him off completely.
 
love Kate


Sun Aug 6, 2006 4:12 pm

kate77494
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Message #1157 of 2363 |
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Hello all, We are back from NIH again. We are going every four weeks now for I do not know how long. I am meeting some wonderful families each time I go. I...
kathebarch@...
trakylian
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Jul 25, 2006
10:00 pm

Hello All and to you especially Kathe, We just got back from the NIH. Kieran is doing great! We had a HORRIBLE time there. He was sedated the first day we...
mmkcgriffin
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Jul 30, 2006
9:15 pm

Alex and I will be up at the NIH on the 13th for a week. This is his 2.5year visit. doesn't time fly. where would be our children without the help and support...
John and Kate Barton
kate77494
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Aug 6, 2006
4:21 pm

Hi Kate, I was thinking of you the other day, funny to see you post. Stephen was asking when we could go back to the fun hospital because he misses his "best...
Karen
underwhelemed
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Aug 8, 2006
7:33 pm

hello to all! It's been a long time since I've written!! I just now got my username again! I have more problems trying to get in here! We got back from NIH on...
sherrip12s
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Oct 14, 2008
1:01 am

Sherri, Alex and I will be at the NIH on the 10th Nov for the week. Love Kate From: nomidsyndrome@yahoogroups.com [mailto:nomidsyndrome@yahoogroups.com] On...
Kate Barton
kate77494
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Oct 14, 2008
1:57 am

Missed you by a week or so, dam!!!   Tilly will be at the NIH around the 17/18th November but we will not be staying at the Inn.   CB ... From: Kate Barton...
COLIN BAILEY
colin375477
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Oct 14, 2008
8:46 am
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