Hi Becky. Our dates were changed also. I was so dissappionted because I was
looking forward to meeting you and Karen D. I will still be having my eye
surgery at Johns Hopkins that week, but no NIH appointment. Hallie and I
have both rescheduled for October. Hopefully we will have another
opportunity to meet. I was very anxious to meet another adult who deals with
this and also having a child you are caring for that deals with this also. I
hope you are doing some better. I hope the headaches are some easier. I know
that is so rough at times. I think of you and hope your days are better.

It has been quite some time since I have posted. Hello to all of you. I have
been keeping up with the postings just not contributing. Sorry. I do hope
you all and your families are doing well. I think of all you Mom's so often.
You have been such an inspiration to me in your postings. I know our days
are much the same and we can all identify with each other on some level. I
can tell you all have great strength as you face the good and the bad days.
Your children are very lucky to have you.

Thanks again to Karen for all her hard work on the NOMID Alliance. I think
we have many good things coming in the future with that endeavor.

Jennifer Earnhart