--- In nomidsyndrome@yahoogroups.com, "sfokaren2003"
<sfokaren2003@...> wrote:
>
> Dear Sherri and All,
>
> We are here ,and all is ok, but our dates have been moved up for our
> NIH trip to July 30-August 3rd. Sherri, will that be when you will
be
> there? It will be fun to see you all again!
>
> Seth had a stomach bug this weekend, but otherwisre is doing ok. He
> sees the rheumatologist (we finally have a good one here) tomorrow.
> It is his routine visit, but it will be good to have him seen
tomorrow
> due to the illness.
>
> The NOMID Alliance is up and running, and is official in California,
> and I need to finish some paperwork for the tax exempt status, and
> have some meeting on line or over the phone with the board people.
It
> has been a challenge with the distance, and I hada lot going on in
> June, so I have not gotten all things done yet for the tax froms,
but
> will submit hopefully by the end of the week, if I can get all the
> board people to vote on some things.
>
> Dori, are you out there? I will try to call you today about the
NOMID
> Alliance.
>
> It has been hard at times to get it all going, on top of life, but
we
> are at least going and are a non-profit, and I need to start
> fundraising more. I have also been trying to de-clutter our
apartment
> in my spare time too, and we are in the process of adoption
paperwork
> and evaluations (we have been trying for years for another child,
but
> since Seth, only lots of miscarriages so we have decided to try to
> adopt), so there is a lot of things going on in my life,in addition
to
> the NOMID Alliance and the usual stuff. However, it is all good,
and
> will all get done, but there is never enough time to get things all
> done as soon as I want!
>
> So that is why no one has heard from me much, but I think of you all
> the time, and am trying to get things going. So much is getting
done,
> but you cannot see me here, doing budgets, reading textbooks on
legal
> stuff, fundraising, non-profits and tax forms (I feel like I am in
> college). I welcome any suggestions, ideas and insight for the
NOMID
> Alliance! I am thinking of doing some low key fundraising efforts
as
> a family and with friends at first, while waiting for full tax
exempt
> status. I may do a garage sale, and donate the profits, or a bake
> sale or something soon. Not big things yet, since I have not had the
> time to plan that well, but all helps. We need big fundraising,
but I
> need some support for that, and have not gotten things together
enough
> for that yet.
>
> My next big goal is to get the survey online, and work on a brochure
> and awareness campaign literature, since that is in demand right now
> from families, and medical people. I have given out tons of
business
> cards with the NOMID Alliance info on it to doctors, and anyone
> interested. If any want some info. cards, let me know. Maybe I can
> make a file online that people can print at the website with the
info
> to print, cut and share with others.
>
> I am motivated, but get sidetracked with life! We are making
> progress, and have a lot of hits on the site every month. I have
hada
> couter on the site since April, and we are getting at least 100
hits a
> month. Not a ton, but considering things, that is not bad. We will
> get more one we get this campaign going.
>
> So, that is what I am doing, and anyone else interested in jumping
in
> or giving input or direction to me will be greatly appreciated!
>
> Karen Durrant
>


Hi Karen,
So glad your there! I was wondering if there was something wrong with
the site. No one has written, and know we are all busy, especially
now with the kids out of school.
I have to say that a T-shirt with the NOMID Alliance on it would be
cool! We could list all the names of the children that we have on the
back of the shirt, and put the logo on the front upper left. People
would have to ask what it is. I would love to have a shirt like that.
Yes, we will arrive at the Inn on the 30th, all of us. Jessi is
excited to see Seth! Miranda of course is excited for the "toy room"!
She also had a stomach virus too, she was pretty sick. But she is
doing good now, omitting the heavy rain and humidity we have, she is
doing alright with the temperatures. It's suppose to be in the 90's
the next 4 days! yuk!! I hate the summer when it gets this hot.
I am very excited to hear of your adoption!! How does Seth feel? He
must be excited to have a brother or sister? I hope all works out for
you all!!!
Well, I have to get to bed, long day here.Hope all is well with
everyone, I sure hope someone writes soon!
Lots of love to all,
Sherri